Childhood Cancer Survivorship:

KEYS TO EMPOWERMENT

Parents, Teen/Young Adult Survivors,
and Health Care Providers

7:30-8:15 Registration

8:15-8:30 Welcome

8:30-9:15 “ Healthful Survivorship: Taking Care of Yourself for Life”

Keynote: Kathy Ruccione, MPH, RN, CPON, FAAN, Nursing Administrator, Co-Director HOPE (Hematology-Oncology Psychosocial and Education Program), Founder LIFE (Long-term Information, Followup and Evaluation Program), Children’s Hospital of Los Angeles; Associate Professor of Clinical Pediatrics, USC Keck School of Medicine

9:15-10:00 “ Stress and Coping with the Childhood Cancer Journey”

Kristin Bingen, PhD, Assistant Professor of Pediatrics, Medical College of Wisconsin; Pediatric Psychologist for Pediatric Hematology/Oncology/ BMT, Children’s Hospital of Wisconsin; Co-founder/Co-facilitator, CHW Young Adult Oncology Group

10:00-10:30. . . . . Break / Resource Fair . . . . . . . .

Please visit the many organizations and resources that are represented at our resource fair today in the lobby.

10:30-11:15 “ Follow-up Care: Don’t Get Lost in Transition”

Karen Kinahan, RN, MS, APRN, Clinical Nurse Specialist, Coordinator, Northwestern University’s Survivor Taking Action & Responsibility (STAR) program

11:15-11:30. . . ...Break . . . .. . . . . . . . . . . . . . . . . .

11:30-12:15 Concurrent Session #1 (each participant may choose one session)

A. “ Back to School: Advocating for your Child’s Educational Needs” - Laurie Smith RN, MSN, APRN-BC, CPON, Pediatric Hematology Oncology Program Coordinator, Banner Children’s Hospital
B. “ Survivorship: The Real Deal” A teen support and networking opportunity, - Shannon Schiefer MA, LPC, Teen Counselor/Program Coordinator, The Wellness Community of Central Arizona
C. “ Chatting with the Experts” A chance to ask questions of our speakers from this morning’s presentations. - Kathy Ruccione, MPH, RN, CPON, FAAN; Kristin Bingen, PhD; and Karen Kinahan, RN,
MS, APRN

12:15-1:15. . Lunch (provided) and Resource Fair . .

1:15-2:00 Concurrent Session #2 (each participant may choose one session)

D. “ What About Me?” Siblings and their Role in Survivorship - Patti Luttrell RN, MS, Assistant Professor, Grand Canyon University, College of Nursing and Health Sciences; mother of a survivor and
Jenny Luttrell, sibling of a survivor
E. “ Endocrine Effects of Cancer Therapy: What About the Hormones?” Tala Dajani MD, MPH, Pediatric Endocrinologist, Phoenix Children’s Hospital
F. “ Resources for Special Needs” A panel discussion involving experts related to disability issues and resources.

2:00-2:10 . . . .. . . . Break . . . . . .. . . . . . . . . . . . .

2:10-2:55 Concurrent Session #3 (each participant may choose one session)

G. “ Strategies of Success: Overcoming Cognitive and
Memory Obstacles after Childhood Cancer Treatment” - Joy Goldberg, PhD, Pediatric Neuropsychologist, Phoenix Children’s Hospital
H. “ Late Effects of Bone Marrow Transplant” - Roberta H. Adams, MD, Program Director, BMT, Phoenix Children’s Hospital, Mayo Clinic Arizona
I. “ Power Beads” A creative way for family members and health care providers to reflect on their dreams, hopes andcourage. -Presented by Beads of Courage

2:55-3:05 . . . . . . Break . . . . .. . . . . . . . . .

3:05-4:00 “ Let’s Talk Survivorship. . .” – a panel discussion

Please join us for a panel of those who have lived this journey themselves: parents, survivors, and family members as well and two pediatric oncology experts: Britt Olsen, RN, PNP, Coordinator, Late Effects Clinic, Center for Cancer and Blood Disorders, Phoenix Children’s Hospital and Kristen Hawking, MSW, Pediatric Oncology Social Worker, Banner Children’s Hospital

4:00-4:15 Closing and evaluations

View the Childhood Cancer Survivorship Keys to Empowerment Conference Brochure

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Conference Information

About The Conference

Parents, Teen/Young Adult Survivors, and Health Care Providers

School Aged Survivors and Siblings (ages 7-14)

Directions

Registration

(Advanced registration for all participants is required)

View the Press Release for the Childhood Cancer Survivorship Keys to Empowerment Conference